Down Syndrome Links
- International Organizations, and Organizations within countries other than the USA
- National (USA) Organizations
- State and Local Organizations
- Forums and Message Boards
- Resources
- Media
- Photo Montages
- New Links
To suggest a website for our Down Syndrome Links page, click here to skip to the comment box.
Please be patient with us this summer. There will sometimes be delays of more than a week before your comment becomes visible, or before your site is added to our listing of links.
International
- Best Buddies
Providing opportunities for one-to-one friendships and integrated employment for people with disabilities - European Down Syndrome Association
- International Mosaic Down Syndrome Association
National (USA)
- Best Buddies
Providing opportunities for one-to-one friendships and integrated employment for people with disabilities - Buddy Walk
The Buddy Walk is a one-mile walk in which anyone can participate without special training. Buddy Walk was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclus - Mosaic Down Syndrome
Site for Mosaic Down syndrome, a chromosomal variant of Down syndrome - National Association for Down Syndrome
NADS is the oldest organization in the country serving individuals with Down syndrome and their families. - National Down Syndrome Congress
It is the purpose of the National Down Syndrome Congress to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome. - National Down Syndrome Society
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.
State/Local
- Alabama: Bringing Up Down Syndrome
B.U.D.S. is a non-profit organization that was started in 2003 that benefits anyone in North Alabama that is impacted by Down syndrome. - Alabama: Down Syndrome Alabama
- Alaska: Alaska Chapter of the Down Syndrome Congress
- Arizona: Crecer Con Amor
(in Spanish) All-volunteer, Latin support group from Tucson, by and for Parents of Special Needs Children - Arizona: Down Syndrome Connection of Tuscon
- Arizona: Sharing Down Syndrome Arizona
Programs throughout Arizona in English and Spanish - Arizona: Southern Arizona Network for Down Syndrome
- Arkansas: Arkansas Down Syndrome Association
- California: Down Syndrome Association of Los Angeles (DSALA)
- California: Down Syndrome Association of Orange County
- California: Down Syndrome Association of San Diego
- California: Down Syndrome Connection of the Bay Area
- California: Down Syndrome Information Alliance
A community organization dedicated to providing resources and support to families, therapists, physicians, educators and others affected by Down syndrome in Northern California. - California: Parents Helping Parents
PHP is a parent-directed community-based organization in Santa Clara whose mission is to help children and adults with special needs receive the support and services they need to reach their full potential. - California:Sonoma County Down Syndrome Support
- Colorado: Mile High Down Syndrome Association
(in English and Spanish) Mile High Down Syndrome Association, Inc. (MHDSA) is a non-profit organization which serves families of children and adults with Down syndrome, and interested professionals in the Mountain States region. - Colorado: The Colorado Springs Down Syndrome Association
- Connecticut: Connecticut Down Syndrome Congress
- Delaware: Down Syndrome Association of Delaware
- Florida: Broward Gold Coast Down Syndrome Organization
- Florida: Down Syndrome Association of Central Florida
- Florida: Down Syndrome Association of Jacksonville
- Florida: Down Syndrome Association of Tallahassee
- Florida: F.R.I.E.N.D.S. (Families Raising, Inspiring, Educating, & Nurturing; Down syndrome
- Florida: Families Exploring Down Syndrome
- Florida: Gold Coast Down Syndrome Association
serving Palm Beach county - Florida: Manasota BUDS (Bringing up Down syndrome)
- Florida: Northern Central Florida Playgroup
Email list through Yahoo! Groups - Florida: P.O.D.S. Angel Support Foundation
Support group that also does outreach to new parents - Georgia: Down Syndrome Association of Atlanta
- Hawaii: Hawaii Down Syndrome Congress
- Idaho: Treasure Valley Down Syndrome Association
- Illinois: Central Illinois Down Syndrome Organization
- Illinois: Gigi’s Playhouse
Gigi’s Playhouse is a Down syndrome awareness center with four locations. - Illinois: Heart of Illinois Down Syndrome Association
- Illinois: Plainfield Area Support Group
- Illinois: Riverbend Down Syndrome Parent Support Group
Support and information to parents of children with Down syndrome in Southwestern Illinois - Illinois: Riverbend Down Syndrome Parent Support Group
- Illinois: Ups for DOWNs
Chicago/Metro area - Indiana: Columbus Area Down Syndrome Support Group
- Indiana: Dad’s Appreciating Down Syndrome
- Indiana: Dad’s Appreciating Down Syndrome
- Indiana: Down Syndrome Family Support and Advocacy Group
Michiana area, Northern Indiana and Southern Michigan - Indiana: Down Syndrome Support Association of NorthEast Indiana
- Indiana: Down Syndrome Support Association of Southern Indiana
- Indiana: Elkhart County Down Syndrome Support Group
- Indiana: Indiana DS Foundation
- Iowa: Hawkeye Area Down Syndrome Association Inc.
- Iowa: Iowa Respite & Crisis Care Coalition
Whether you are caring for a loved one with special needs and would like rest, if you need training, or if you are currently in a crisis and need time away from your children, we can help! - Iowa: Up with Down Family Support Group
Based in DesMoines - Kansas: Down Syndrome Society of Wichita
- Kentucky: Down Syndrome Association of Central Kentucky
- Kentucky: Down Syndrome of Louisville
- Kentucky: Down Syndrome Support Group of South Central Kentucky
- Louisiana: Down Syndrome Association of Acadiana
- Louisiana: The Down Syndrome Association of Greater New Orleans
- Louisiana: Up with Downs
Shreveport-Bossier area - Maine: Southern Maine Down Syndrome Family Network
- Maryland: Angels Forever Up
Raising awareness of Down syndrome in southern Maryland - Maryland: Anne Arundel Down Syndrome Connection
- Maryland: Chesapeake Down Syndrome Parent Group, Inc.
- Maryland: Down Syndrome Network of Montgomery County
- Maryland: Family Resource and Information Network for DS.
Frederick County - Massachusetts: Down Syndrome Resource Group of Western Massachusetts
- Massachusetts: Massachusetts Down Syndrome Congress
- Michigan: Capital Area Down Syndrome Association
- Michigan: Down Syndrome Association of West Michigan
- Michigan: Families Exploring Down Syndrome
Detroit area - Michigan: Michigan Down Syndrome Group
Yahoo! Health Group (email/message list) - Minnesota: Down Syndrome Association of Minnesota
- Mississippi: Central Mississippi Down Syndrome Society
- Missouri: Down Syndrome Association of Greater St. Louis
- Missouri: Down Syndrome Association of Mid Missouri
- Missouri: Down Syndrome Guild of Greater Kansas City
- Montana: Missoula Buddy Walk
- Nevada: Down Syndrome Association of Southern Nevada
- New England: Northern New England Down Syndrome Congress
- New Jersey: Down Syndrome Association of Central New Jersey
- New Jersey: Family Resource Associates, Inc.
- New Jersey: Knowledge and Information about Individuals with Down syndrome
Non-profit based in Southern New Jersey. Our purpose of forming KIIDS was to help support new parents of babies with Down syndrome since we all had such positive experiences in sharing our stories with one another. - New Jersey: Network 21
Network 21 is a parent-run network for families with Down syndrome in Central New Jersey. - New Mexico: ARCA
Dedicated to providing premier residential and vocational services to people with developmental disabilities - New York: Aim High
Down Syndrome Aim High Resource Center in Albany, New York - New York: Association for Children with Down Syndrome
Long Island’s leading service provider for children and adults with Down syndrome - North Carolina: Piedmont Down Syndrome Support Network
- North Carolina: The Down Syndrome Association of Charlotte
- North Carolina: Triangle Down Syndrome Network
Located in central North Carolina, serving families in Wake, Durham and Orange and surrounding counties. - Ohio: Down Syndrome Association of Central Ohio
- Ohio: Down Syndrome Association of Greater Cincinnati
- Ohio: Down Syndrome Association of Greater Toledo
- Ohio: Miami Valley Down Syndrome Association
- Ohio: The Upside of Downs of Greater Cleveland
- Oklahoma: Down Syndrome Association of Central Oklahoma
- Oklahoma: Down Syndrome Association of Tulsa
- Oregon: Down Syndrome Association of Southern Oregon
- Oregon: Northwest Down Syndrome Association
- Oregon: Williamette Valley Down Syndrome Association
- Pennsylvania: Bucks County Down Syndrome Interest Group
- Pennsylvania: Centre County Down Syndrome Society
- Pennsylvania: Chester County Down Syndrome Interest Group
- Pennsylvania: Down Syndrome Group of Western Pennsylvania
- Pennsylvania: Down Syndrome Support Group of the Susquehanna Valley
- Pennsylvania: Eastern Pennsylvania Down Syndrome Center
- Pennsylvania: Friends of Trisomy 21 Center, Inc.
The Trisomy 21 Center is at Children’s Hospital of Philadelphia - Pennsylvania: Montgomery County of PA, Down Syndrome Interest Group
- Pennsylvania: York Area Down Syndrome Association
- Rhode Island: Down Syndrome Society of Rhode Island
- South Carolina: Down Syndrome Association of the Lowcounty
- South Carolina: Down Syndrome Family Alliance of Greenville
- South Carolina: Grand Strand Down Syndrome Society
- Tennessee: Down Syndrome Association of Memphis and Mid-South
- Tennessee: Down Syndrome Association of Middle Tennessee
- Tennessee: Friends; Friends Reaching Inspiring and Educating Neighbors about Down Syndrome
Northeast Tennessee - Texas: Down Syndrome Association of Central Texas
- Texas: Down Syndrome Association of Houston
- Texas: Down Syndrome Association of San Antonio
- Texas: Down Syndrome Guild of Dallas
- Texas: Down Syndrome Partnership of Tarrant County
- Texas: Down Syndrome Support Group of Bryan/College Station (B/CS)
- Texas: East Texas Down Syndrome Group
(in English and Spanish) - Texas: Panhandle Down Syndrome Guild
- Utah: Utah Down Syndrome Foundation
- Virginia: Down Syndrome Association of Greater Richmond
- Virginia: Down Syndrome Association of Hampton Roads
- Virginia: Down Syndrome Association of Northern Virginia
- Virginia: Down Syndrome Association of Roanoke
serving Southwest Virginia - Virginia: Down Syndrome Association of Virginia Peninsula
- Virginia: Virginia Dads Appreciating Down Syndrome
meetings in Richmond, Virginia - Washington: Parent to Parent King County
- Washington: Upside
an informal society of individuals, parents, and friends involved with the world of Down Syndrome - West Virginia: Down Syndrome Association of Fredricksburg
- West Virginia: Down Syndrome Network of West Virginia
- Wisconsin: Down Syndrome Association of Wisconsin
- Wisconsin: Down to Earth
- Wisconsin: Madison Area Down Syndrome Society
Resources
- 5 Minutes for Special Needs
Support, insight, and inspiration. Part of the 5 Minutes for Mom series. - Anna’s Angels
Dedicated to promoting research for Down syndrome - Annie Forts Up Syndrome Fund, Inc.
Providing enrichment opportunities to persons with Down syndrome. - Archie’s Room
Personal website sharing their family story with Down syndrome, heart disease, and pediatric cancer - Band of Angels Press
Founded to create and distribute products starring children with Down syndrome. - Be Not Afraid.net
An outreach to parents with poor prenatal diagnosis - Bernadette Resha
Website of an artist who happens also to have been born with Down syndrome - Beyond Play
Early Intervention Products for Young Children with Special Needs - Brad Hennefer-Golf for Life
Providing Golf Opportunities to Individuals with Down Syndrome - Bridget’s Light
We welcome readers into our lives with the hope of furthering understanding of Down syndrome, and helping others see how beautiful life is for us with Bridget as a part of our family… - Buddy Walk
The Buddy Walk is a one-mile walk in which anyone can participate without special training. Buddy Walk was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclus - Buddy Walk Video, Times Square 2007
Video of the NDSS-sponsored Buddy Walk as it went through Times Square, New York City - Campaign for Down Syndrome
Blog tracking genetic research and its social implications, presented by Renate Lindeman - CaringBridge website of John Bremer
John was diagnosed with Acute Lymphoblastic Leukemia (A.L.L.) in June 2005 and will finish treatment in August 2008 - Chris Burke
Site for the Chris Burke band. Chris is best known for the four years he spent playing Charles “Corky” Thatcher on the hit ABC-TV show “Life Goes On” and his reoccurring role as Taylor, the angel of faith on the hit CBS-TV show “Touched By An Angel”. - Club NDSS
A web site for people with Down syndrome and other developmental disabilities - Colin & Katrina’s Family Website
Includes the story of their son’s “heart story,” information everyone should learn, and links to the web resources this Edmonton family found valuable. - Communicating Partners (Dr. James D. McDonald)
Helping Parents Help Children: parents are in the best position to make sure their child develops social and communicative skills to their potential. - Diagnosis Down Syndrome
Lee family website of information and encouragement - Disability Solutions
A free publication for families and others interested in Down syndrome and developmental disabilities - Down Syndrome Educational Trust
The Down Syndrome Trust works around the world to improve development, education, and social achievements of people living with Down syndrome. - Down Syndrome for New Parents
A resource for those who love someone with Down syndrome - Down Syndrome Health Issues by Len Leshin
Resource site by Pediatrician who is also a parent of a child with Down syndrome - Down Syndrome Online
“Comprehensive, up-to-date and reliable information, guidance and news about Down syndrome.” Published by the Down Syndrome Educational Trust - Down Syndrome Quarterly
Publication (Academic) of the Down Syndrome Research Foundation - Down Syndrome Research Online Advocacy Group
Bridging the Gap Between Parents and Down Syndrome Research - DS2008 - Shifting Perspectives
Photographer Richard Bailey’s photograph calendars are noted for his portraits of children and young adults with Down syndrome - Einstein Syndrome
Online Magazine, “Down Syndrome with a Positive Attitude” - Features by Pamela Wilson, BellaOnline’s Special Needs Children Editor
Various articles about Special Needs Children edited by mother of a child with Down syndrome - Growth Charts for Children with Down Syndrome
- Guide book for medical professional; book for expectant parents
Resource materials for new parents and doctors delivering diagnosis. Created by the design firm Canisterco, with current information and photography. - Iowa: Iowa Respite & Crisis Care Coalition
Whether you are caring for a loved one with special needs and would like rest, if you need training, or if you are currently in a crisis and need time away from your children, we can help! - Jennifer Graf Groneberg
Author of “Road Map to Holland” - Karen Gaffney Foundation
Dedicated to full inclusion in families, schools, communities, and the workplace for people with Down syndrome or other developmental disabilities. - Lili Claire Foundation
Helping children living with neurogenetic conditions, while providing hope and resources to the families who love them. Las Vegas, Los Angeles, Nashville. - Lives Touched by Down Syndrome
website and book featuring personal stories about individuals with Down syndrome. - Loving and Learning
reading and language development techniques and materials - Michael Jurogue Johnson
Michael Johnson, a talented artist who happens to have Down syndrome - Minor Family
An African-American family celebrating the life of their child with Down syndrome. - Mosaic Down Syndrome
Site for Mosaic Down syndrome, a chromosomal variant of Down syndrome - Movie site for documentary “Up Syndrome”
Director’s portrait of charismatic childhood friend, who has Down syndrome. On DVD May 15, 2008, and through Netflix. - National Down Syndrome Congress
It is the purpose of the National Down Syndrome Congress to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome. - National Down Syndrome Society
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy. - New Mexico: ARCA
Dedicated to providing premier residential and vocational services to people with developmental disabilities - Pathfinder Village
A Residential Community in Central New York dedicated to children and adults who have Down syndrome. - Personal Website: Alexandra Rose
Personal website celebrating Alexandra Rose - Public Man, Private Father (Charles de Gaulle was the father of a child with Down syndrome))
Charles de Gaulle, leader of the Free French Forces during World War II, was also the loving father of a daughter with Down syndrome. What lessons might that daughter’s life hold for those of us who have followed in her family’s footsteps? - Pujols Family Foundation site. “faith, family, others”
Foundation of the family of major league baseball player Albert Pujols. Dedicated to the love, care, and development of people with Down Syndrome and their families. - Raymond Hu’s Website
Rayond Hu is an artist with Down syndrome who is known for his Chinese brush paintings of animals, in ink and watercolor. A film documentary of Mr. Hu’s life and work was made in 1997, and a book has been published about his work. - Reece’s Rainbow
International Down Syndrome Orphan Ministry. Adoption, Advocacy, Outreach, and Aid - Seattle College Program for Special Needs Adults
October 17, 2005. NPR radio segment on a community college program for high-functioning students with Down syndrome or other issues. (3 min.) - Signing Time
American Sign Language Videos - Soeren Palumbo Fremd HS Speech 2/28/07
YouTube Video (10 min) High School speech about why the word “retard” is offensive. - Sujeet Desai
Site of a Musician with Down syndrome who lives and works in the Rome, New York area - The Simple Truth of Service, inspired by Johnny the Bagger
Video slideshow about a young man with Down syndrome, and how he wanted to do something special for customers where he works. - Victoria and Me
Photographer Maria de Fatima Campos tells about the first three years with her daughter with Down syndrome in words and pictures. (note: includes artistic semi-clothed pregnancy self-portrait.) - Welcome to Holland
famous 1987 short essay by Emily Perl Kingsley, about having a child with Down Syndrome, though it is applicable to many other birth defects, and is given by many hospitals and child-care professionals to new parents of special-needs children. - What To Say to Parents of a Child With a Diagnosis
This speech was written for a Christian Mothers Of Preschoolers Group. It contains Bible Verses. You have my expressed permission to print this speech, personalize it, customize it, use the research and deliver it to any audience. - World Down Syndrome Day
Down Syndrome International (DSI) has officially earmarked 21 March as World Down Syndrome Day (WDSD). - Wrights Law Special Education Law and Advocacy
Forums/Message Boards
- Baby Center.com
Down Syndrome Support Board on BabyCenter.com - Down’s Heart Group
Support and information for those whose child is facing heart surgery, who has had surgery, those whose condition is inoperable, and those whose condition is inoperable, and those families who are bereaved. - DownSyn Forum
- P.R.O.U.D. Discussion Board (Parents, Relatives, and Others Understanding Down’s)
- T21 Online Community
- Uno Mas Down Syndrome Online
Personal Blogs
- Down Syndrome Indiana Self-Advocates blog
Blog posts by Down syndrome self-advocates in Indiana
Photo Montages
- A Life Worth Living
- A Year in the life of Payton
- Alexis Skye Rimmer’s Montage
- Brendan Dale Westfah
- Caden’s First Year
- Cason’s First Year
- D is for Down syndrome
- Down syndrome: The Real Deal
- Hannah’s First Year
- Happy Father’s Day Daddy! 2006
- Jaemen’s First Year
- Kallie Vanessa
- Kristopher’s First Year
- Life is a celebration
- Matthew Edwards’ First Year
- My Super Max
- Our Gift from God, Noah Matthew
- Our Little Stars…The BC Babes
- Phight for Phoebe
- Samuel
- Sean Patrick
- Somewhere Over the Rainbow…
- Special Olympics 2006
- The Life of an Angel
- The RAVE
- Three Years With Kayla
By Country
- Argentina: Asociación DOWN de Avellaneda
(in Spanish) - Argentina: Asociacion Sindrome de Down Republica Argentina
(in Spanish) - Australia: ACT Down Syndrome Association
- Australia: Down Syndrome Association of Queensland, Inc.
- Australia: Down Syndrome Association of Tasmania, Inc.
- Australia: Down Syndrome Association of Victoria
- Australia: Down Syndrome Association of Western Australia
- Australia: Down Syndrome NSW
- Australia: Down Syndrome Society of South Australia
- Australia: Foundation 21
- Australia: Toowoomba & District Down Syndrome Support Group
- Austria: Down Syndrom
- Belgium: Downsyndroom Vlaanderen
(in Dutch) - Brazil: Fundacao Sindrome De Down
(in Portuguese) - Canada: Association Du Syndrome De Down De L’Estrie
(in French) - Canada: Canadian Down Syndrome Society
- Canada: Down Syndrome Association Of Toronto
- Canada: Down Syndrome Association Of York Region
- Canada: Durham Down Syndrome Association
- Canada: Edmonton Down Syndrome Society
- Canada: Halton Down Syndrome Association
- Canada: London Down Syndrome Society
- Canada: Lower Mainland Down Syndrome Society
- Canada: Manitoba Down Syndrome Society
- Canada: Nipissing Down Syndrome Society
- Canada: Nova Scotia Down Syndrome Society
- Canada: Waterloo Regional Down Syndrome Society
- Canada: Windsor-Essex Down Syndrome Parent Association
- Croatia: Down Syndrom Centar Pula
(Options for English or Hrvatski) - Czech Republic: Centrum Downova Syndromu
(in Czech) - Czech Republic: Klub rodičů a přátel dětí s Downovým syndromem
(in Czech) - Denmark: Forældre til mongolbørn i København
(in Danish) - Denmark: Landsforening Downs Syndrom
(in Danish) - Dubai: UAE Down Syndrome Support Group
(in English) - Germany Down-Syndrom Infocenter
(in German) - Germany: Arbeitskreis Down syndrome e.V.
(German or English) - Ireland: Down Syndrome Centre
providing information about Down syndrome online now, and raising money to build a Down Syndrome Centre in Ireland. - Ireland: Down Syndrome Ireland
- Italy: Associazione sindrome di Down Onlus–Verona
(in Italian) - Italy: L’Associazione Italiana Persone Down
- Italy: Pianetadown.org
(In Italian) - London: Down’s Syndrome Norfolk
- Malasia (Penang Down Syndrome Association)
(in English) - Netherlands: Stichting Down syndroom
(in Dutch) - New Zealand: New Zealand Down Syndrome Association
- New Zealand: Upside Downs Educational Trust
- Nigeria: Down’s Syndrome Association Nigeria
- Philippines: Down Syndrome Association of the Philippines
- Romania: Sindrom Down Romania
(in Romanian) - Russia: Down Syndrome Association
(choice of English or Russian) - Russia: downside up
(choice of English or Russian) Improving the quality of life for Russian children with Down syndrome - Scotland: Down’s Syndrome
Helping people realize their potential - Singapore: Down Syndrome Association
- Spain: La Asociación Síndrome de Down de Cádiz y Bahía “Lejeune”
- Sweden: Downs Syndrom
(in Swedish) - Switzerland: Association Romande Trisomie 21 - ART 21
(in French) - Switzerland: insieme - Vereinigung für Kinder mit Down-Syndrom
(in German) - Switzerland: Schweiz EDSA
(in German) - United Kingdom: Bedfordshire Down’s Syndrome Support Group
- United Kingdom: Bristol Area Downs Syndrome Support
- United Kingdom: Calderdale Down’s Syndrome Group
- United Kingdom: Down Syndrome Association
- United Kingdom: Down’s Heart Group
- United Kingdom: Down’s Syndrome London
- United Kingdom: Liecestershire Down’s Syndrome Group
- United Kingdom: Mosaic Down Syndrome UK
- United Kingdom: P.R.O.U.D.
- United Kingdom: The Down’s Syndrome Medical Interest Group
- United Kingdom: The UPS of Downs
- United Kingdom: Wakefield & District Down’s Syndrome Group
Media
- At Home with Down Syndrome by Caitrin Nicol
preview article from the Spring 2008 journal “The New Atlantis.” - Bearing ‘Gifts’
July 22, 2007. Read about Elizabeth Price (Chapter 43, When the Other Shoe Drops) and her son Jude in the Fort Wayne Journal Gazette - Beyond the Diagnosis: The joys of a child with Down Syndrome
June 5, 2007. Andrea Morehead of WTHR in Indianapolis conducted a 4-part series called “Beyond the Diganosis” series. Part 4 includes information about GIFTS. - Choosing Naia: a Family’s Journey
October 3, 2002 Radio interview of Naia’s parents, the subject of the book “Choosing Naia.” - Congresswoman Cathy McMorris Rodgers: Touched by Down Syndrome
(pdf; 2.7 MB) April/May 2008 Northwest Woman (magazine) interview - Dad’s Admiration Makes Strong Bond with Daughter
December 8, 2006. NPR interview (4 min.) of David Warm and his teen-aged daughter Mary. Mary has Down syndrome. - Dealing with Down syndrome
April 10, 2008. Ashland Daily Tidings newspaper article interviewing the Rogers family - Down, Not Out (National Catholic Register; July 6-12, 2008 issue)
Recent advances in Down syndrome research and the Kennedy Brownback bill. Interviews Drs. Reeves, Mobley, and Skotko. - Dreams
via YouTube. Short documentary film (4 min) of children and adults with Down syndrome talking about their dreams and what they’re proud of in their lives. - Duo: a film by Alexandre Ginnsz
Movie (fiction) about a 12-year-old with Down syndrome and his crush on a 12-year-old girl violinist - Gifts for Every Parent
June 01, 2007. Several of our GIFTS contributor authors were featured in a TV news story by Anita Brinkman aired by ABC affliliate WPVI in Philadelphia. - Girls Bask in Their New Destiny: Cheerleaders
September 21, 2007. Washington Post story about a squad of cheerleaders, including a girl with Down syndrome - Movie site for documentary “Up Syndrome”
Director’s portrait of charismatic childhood friend, who has Down syndrome. On DVD May 15, 2008, and through Netflix. - Praying with Lior
Documentary Film portrait of a boy with Down syndrome as his Bar Mitzvah approaches - Seattle College Program for Special Needs Adults
October 17, 2005. NPR radio segment on a community college program for high-functioning students with Down syndrome or other issues. (3 min.) - Seeing the light: Mother of a child with Down syndrome says parents should enjoy the journey
June 18, 2007. GIFTS Editor Kathryn Lynard Soper interviewed by the Deseret News
New Links
- 5 Minutes for Special Needs
Support, insight, and inspiration. Part of the 5 Minutes for Mom series. - Down, Not Out (National Catholic Register; July 6-12, 2008 issue)
Recent advances in Down syndrome research and the Kennedy Brownback bill. Interviews Drs. Reeves, Mobley, and Skotko. - Guide book for medical professional; book for expectant parents
Resource materials for new parents and doctors delivering diagnosis. Created by the design firm Canisterco, with current information and photography. - Public Man, Private Father (Charles de Gaulle was the father of a child with Down syndrome))
Charles de Gaulle, leader of the Free French Forces during World War II, was also the loving father of a daughter with Down syndrome. What lessons might that daughter’s life hold for those of us who have followed in her family’s footsteps?
Books
- Aussergewoehnlich
(in German) Portrait photography book of children with Down syndrome, by Conny Rapp - Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Our Lives
(You are at this website now) In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. - Guide book for medical professional; book for expectant parents
Resource materials for new parents and doctors delivering diagnosis. Created by the design firm Canisterco, with current information and photography. - He Has Up Syndrome Not Down Syndrome
site for the book by Caroline Brandt - I Just Am
site for the book “I Just Am.” Written by a young man with Down syndrome and his father. - Jennifer Graf Groneberg
Author of “Road Map to Holland” - Spirit Courage and Resolve
Site for the book telling the story of a Special Olympics athlete’s road to gold
July 30th, 2008 at 9:05 pm
We thought you might enjoy seeing our blog. It might be one you would want to pass along to parents. There are 3 parts to it. The first attached is an introduction with a fabulous montage. The second is made up of stories from parents all over the world. The third is an ongoing blog, with the girls who inpspired the whole project. The main page is called Hidden Treasures Our T21 Journey. The next is Hidden Treasures Our T21 Journey~ Our Stories. The final one is called Erin and MaryEllen’s Excellent Adventures. All of them can be found in the link above. We hope you enjoy them, and will consider passing them along to others. God bless. Diane Grover
July 3rd, 2008 at 9:07 am
I have just published an article on the recent advances in Down syndrome research and the Kennedy Brownback bill. In it, I interview Drs. Reeves, Mobley, and Skotko.
Here’s the link:
http://ncregister.com/site/article/15354/
June 10th, 2008 at 3:45 pm
Hi
Down Syndrome Centre is an Irish charity set up by parents of children with Ds to establish Ireland’s first centre to provide a rangeof services - medical, developmental and educational - specific to the needs of people with Ds of all ages.
We have just launched our new website which will soon feature blogs authored by a mother /father / sister and others with loved ones bornwith Ds.
We hope you’ll give us a mention http://www.downsyndromecentre.ie
Thanks for your support
Sheila Campbell.
May 22nd, 2008 at 10:00 am
This website (http://alexandrarose1.homestead.com/) is one my sister-in-law put together a short time after her daughter (my niece) Alexandra (Alex) was born. It is an excellent source of information and a wonderful uplifting account of the joy that having Alex in our lives has brought. It is a strong message of inspiration, joy and the high potential children with Down Syndrome can achieve. She gives alot of useful information for parents who are shocked by hearing the words, your child has Down Syndrome and helps them see the true joy those words will actually bring. Just thought it would definitely be a site that could help parents and family members. She does have contact info on her website. Thank you.
May 17th, 2008 at 2:44 pm
We’ve added Centre County Down Syndrome Society–thanks for the tip!
May 16th, 2008 at 10:34 pm
A group of parents in our area have created the Centre County Down Syndrome Society - we are affiliated with the NDSS and NDSC and are located in Centre County, PA, home of Penn State University. Our website is http://www.centrecountydownsyndrome.org/
Thanks!